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MyChoices Project

Welcome to the My Choices Project website

Image of the MyChoices logo

The ‘My Choices’ Project
Principal investigator: Professor Jane Noyes
Researchers: Dr. Llinos Spencer , Ginny Bennett, Lucie Hobson
Funded by NISCHR



Families with children with life limiting conditions and complex disabilities require early and ongoing support with their child’s health and social care, and help to minimise the wider impacts on the family. This type of support is called ‘palliative care’, and some children need this care over decades.
The Welsh Assembly Government has made palliative care and support to families a priority. Current provision is known to be fragmented and children frequently have few choices. The study was designed to find out about the experiences of children with palliative care needs and their families, and map and cost local services to inform commissioning.

The ‘My Choices’ study was undertaken in collaboration with two leading children’s charities: Together for Short Lives and Contact a Family, along with colleagues from the ‘Lifetime Service’ in Bath

Download the full report here

For further information contact: see the project website

Nyree Hulme
Centre for Health-Related Research
School of Healthcare Sciences
Bangor University
Ffriddoedd Road
Bangor
Gwynedd LL57 2EF

Telephone: 01248 383 150
E-mail: n.d.hulme@bangor.ac.uk

This study is funded by the Wales Office of Research and Development for Health and Social Care (WORD).